Lockdown life

The challenges of life in lockdown

This unprecedented situation we have all found ourselves in is unlike anything we have ever experienced before. We have had to suddenly adapt to new ways of working and living, which can be particularly challenging for those of us who don’t like change and feel we need certainty and routine to navigate our way through life. Having the ability to meet up and socialise with friends and family members is an integral part of anyone’s mental health, so having to socially distance or going weeks or months without seeing them is inevitably going to put a strain on our wellbeing. Supermarkets and public spaces can be anxiety provoking and stressful when we have to keep two metres apart from everyone and there are massive queues. I miss just being able to pop into a local shop quickly and easily, not having to think about a horrible but necessary one way system and having to stay back from everyone.

My first university year abruptly moved online and then came to an end, like everybody else’s. Before lockdown, I had got my act together and had planned all sorts of voluntary work and paid work to keep me busy throughout the summer, as I know I’m someone who needs to fill my time to stay sane. I’d also got various holidays lined up as well as day trips and events/conferences, all of which have been postponed or cancelled. This has been particularly challenging for me, as having a lot of things to look forward to really keeps me going and helps keep me cheerful. I have been really missing my weekly choir rehearsals and found that the online Zoom sessions just weren’t the same and were actually making me miss normal rehearsals even more, so have made the decision to take a break until it eventually returns properly. Being the only one not working or having anything to do is challenging in a household where everyone else is working – although of course I’m grateful we’re all together and we all get on well! The most heartbreaking thing that has happened was suffering a bereavement and not being able to get close to/hug family members at the funeral that weren’t in my household, normally a natural instinct.

I accept that other people are in worse situations than me with tough family situations, job losses, illness etc but adapting to this peculiar and often frustrating and down-heartening time has evidently been overwhelmingly difficult for me at times, and has been a sharp lesson of resilience and tenacity to us all. I hope that this crisis will enable us to be stronger and gain more perspective with other challenges that we come across in our lives when this pandemic is over and things eventually start returning to normal. We will appreciate the small things in our lives that bring us joy so much more, and I feel we will never take things for granted ever again.

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Meanwhile, here are some things that I have found helpful during this time:

Maintaining a routine – Routine is crucial for a lot of us to gain a sense of control and stability. I have been trying to make and stick to a routine each day, which includes things like eating and going to bed at the same time, and drinking a glass of water at specific points in the day. We may not have our normal routines, but planning your day out can definitely help! Luckily, I still have my Dyspraxia Foundation Youth Champion role and my Local Coordinator role and feel like I have been able to get more involved and do more things to help the youth group and members of our local group.

Exercise and nature – Going out for some fresh air every day, even in the rain, has made a real difference to my mood. Even after a ten minute walk round the block when you’re feeling sluggish and unmotivated, you will notice a decrease in your stress levels. Being immersed in nature has huge benefits for our mind and allows us to slow down and notice little things more. We have been fortunate enough to be able to explore new routes and I have set myself a nature goal of seeing a kingfisher, which has also been an exciting mission! (Potentially a barrier when you don’t have great vision as they’re so quick and difficult to spot, but I’m not going to give up.) Due to all the cancelled races, my running motivation has virtually been non-existent recently, but I will get back to it when I feel like it and have found walks just as helpful!

Reflecting on the day – On Twitter, I have been participating in #3Positives every night just before going to bed. This encourages you to think of three good things in the day, no matter how small – it could be something as simple as having your favourite meal! Not only does it help you to reframe your day more positively by appreciating the little things more (which is more challenging but particularly helpful/important on bad, low energy days), it also actively motivates you to fulfil positive things in the day – throughout the day I’m constantly aware of the fact that I have committed myself to tweeting three positives, so I’m seeking to do more things. I also always enjoy reading and responding to other people’s, and I have been told that mine brings joy to other people, which is another motivator for me to do it! This is a great initiative started by Kerry Pace, and has massively helped my wellbeing during this time.

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Getting creative – Now we have more time than usual, I have had to find more things to occupy my busy mind and have had more time to do things I wouldn’t normally do. I have resorted to more cooking and baking, trying out new recipes including making different breads and pasta, which have been positive challenges for me. I am also really enjoying doing jigsaw puzzles, as I find them incredibly mindful and relaxing, perfect for distracting yourself from the mess of the world. We have also made our own candles, got a loom band kit, and modelling clay. I’ve even just completed my first painting by numbers project and have moved on to a different one, which I have found has the same effect as the puzzles, as well as being incredibly satisfying and rewarding once it’s finally completed! This was a revelation to me, as I’ve never been any good at, or even interested in, art. Perhaps try a new hobby or skill and you may surprise yourself with what you enjoy doing!

I also made the decision to purchase Animal Crossing New Horizons on the Nintendo Switch, which has been another creative and relaxing thing to immerse myself into. I’m constantly trying to improve Serenity (my island) and its scenery, and I’m really pleased that my sister has just bought herself one too. Disclaimer: it’s addictive!

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Music – Feel good, upbeat, motivating music always lifts my spirits and never fails to make me smile. I have always liked a whole variety of artists/bands, but I seem to have periods where I can’t stop playing a certain artist/band. My guilty pleasure at the moment is Elton John – I have undoubtedly annoyed my family with the number of times I’ve played his songs recently, dancing to ‘Crocodile Rock’ and ‘I’m Still Standing’ around the kitchen and rewatching Rocketman repeatedly. Oops! Creating a playlist of your favourite music to listen to when you’re not feeling great, or turning to a particular album is a great idea.

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All that said, it is definitely important to acknowledge the sadness and disappointment of this awful situation too. Whatever challenges you have faced through this crisis, it is ok to have bad days, to struggle with it all, to crave normal times again and to feel whatever you feel. There are days where I don’t feel productive, cheerful or motivated at all and I just feel like crying about everything that’s happened for me and my family since Christmas – I’m still trying to tell myself that is ok. Accept however you feel without trying to fight it, as my mentor keeps having to remind me. This pandemic will end eventually. We will get our lives back. It is just going to be a gradual, frustratingly slow, uncertain process…

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What I wish people understood about mental illness

Ahead of Mental Health Awareness Week next week (18th – 24th May) I thought I’d share a few ideas of what I wish people knew about mental illness, to hopefully raise more understanding and debunk some myths. There is definitely more I want people to know, but here are a few!

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  1. That there often isn’t a single reason or cause for feeling low 

I can be having a great day, feeling perfectly happy or average, and then my mood suddenly dips often for no obvious reason (for me, this tends to happen most frequently in the evening or at night when I’m alone with my thoughts.) Similarly, I can just wake up feeling sad or numb, energy sapped from me. Unlike normal feelings of sadness which we all experience from time to time, there is hardly ever a clear reason or trigger for depression making an unwelcome appearance. Analysing the cause is effort wasted. When my family asks me why I’m low in mood, I can rarely give a concise answer because I don’t even know myself. This makes depression a very confusing, distressing and frustrating illness, and makes it more difficult to know what to do to cheer myself up.

 2. Feelings can fluctuate 

Similar to my last point, feelings can fluctuate. Depression ebbs and flows, like the tide. There is no consistency in the illness, which means that it can sometimes be really overwhelming and nasty, and other times calm – but I feel like it is always there in the background, nagging me. Dealing with mental illness is a work in progress and there are plenty of ups and downs in recovery.

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3. It is NOT a choice or a weakness

You can’t choose not to have a mental illness anymore than you can choose not to have cancer, the flu, pneumonia or any other physical illness. I wish my black dog would just leave me for good, but unfortunately I have recently acknowledged that, for me, it is something which I’ll likely have to continually manage through my life. Depression, anxiety and other mental health conditions are complex and it isn’t something we can just ‘snap out of’ or ‘choose to be happy.’ I wish we could! It is debilitating and horrible to suffer with any kind of mental health problem, and we are doing our best to stay cheerful. I don’t think anyone can fully understand what it’s like to suffer unless they experience it themselves, but kindness and compassion certainly never goes amiss. I often feel really guilty, racked with sympathy for my family as it must be challenging to live with. But I know that logically this is an irrational emotion to feel, as it is out of my control. It is just my brain telling me I should feel guilty for making my family suffer.

4. It doesn’t discriminate 

Mental illness doesn’t care whether you’ve got a loving family, friends, a nice house, pets or any other thing that’s good in your life. It can affect anyone, regardless of these things. Having all the things I’ve listed are really helpful and I do appreciate them, but they haven’t stopped my anxiety or depression. It is not anyone’s fault. If I seem withdrawn, flat or just not myself, it is not a reflection on anyone.

5. Everyone is different and there is no ‘quick fix’

Everyone is affected differently by anxiety and depression – what helps for one person may not necessarily help another. For example, I know mindfulness is a powerful tool for many people, but personally I just can’t switch my brain off to lie still and observe my breath. Mindfulness works best for me when I’m actually doing something, such as walking in nature and paying attention to all my senses that way. Taking the time to get to know each individual and what’s helpful for them is beneficial.

Medication is definitely vital to my mental health management, but it’s not a cure and I still experience lows from time to time. In Frankie Bridge’s book Open, her psychiatrist compares antidepressants to a life jacket: wearing one won’t stop you falling off the boat and if you do, you will get wet. But you will bob back up to the surface and won’t sink to the bottom. I found this a very helpful analogy to understand the role of antidepressants. A combination of talking therapy, medication and self help/self care strategies usually work best, but again this isn’t a cure or quick fix. It can take time to discover what works best for you.

6. It is a constant, exhausting battle with your mind

My brain loves to tell me I’m not good enough and no one really likes me. It is very talented at telling me that I don’t matter and I’m stupid, among other things. It is like being trapped in a prison in your mind. These negative thoughts can be overwhelming and difficult to switch off, causing me to feel distressed, particularly when I’m tired. Rumination, worrying and NATs (Negative Automatic Thoughts) are exhausting.

What do you wish people knew about mental illness?

 

 

 

University

When you think of university, what do you think of…?

Freshers events, drinking, parties, clubbing, clubs and societies, the new-found freedom and independence of living away from home. In fact, I chose to write about alcohol use and why it’s entrenched in the typical student life for my first assignment, taking into account all of these and more influential factors!

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Being a mature student and still living at home and commuting in every day, my experience has proved to be quite different from what people would usually expect and perceive to be typical – despite this, I still regard it positively so far. A few years ago, I too imagined this wild and hectic lifestyle if/when I eventually went to university – I would have considered it not working out and being a ‘disaster’ if I hadn’t made friends and if I hadn’t gained a social life from it.

All too often, the first thing people ask me about with regards to university is whether I’ve made friends and been out drinking a lot, which I definitely don’t blame them for – that is part of the normal student culture! But it can frustrate me when the focus is primarily on that, and not on the course itself. The reason why I decided to study at university is because of the foundation year course, not the social side, especially since I’ve gone a bit older at a later stage in life. Since I’m finding the actual subject interesting and enjoyable at the moment (though a little stressful at times but that’s normal!) I think that’s the main thing; I’m not failing because my experience is a little different, I’m actually doing well on the course with thanks to the brilliant, friendly and approachable tutors who are always willing to go the extra mile to help with any queries or concerns when they can.

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My university campus has smaller class sizes, more support from tutors and a structured timetable, which seems to suit me very well. 

It has always taken me longer to get to where I want to be, hence why I’m a mature student doing a foundation year aged 21, when seemingly everyone else my age has graduated or are in their final year. Frustratingly, I have also always found it very difficult to make friends due to always feeling different, struggling to initiate/join in conversations and just being myself. Therefore, although I have spoken to other students on my course through the dreaded group work aspect, I haven’t made any firm friendships yet – but I’m not massively bothered by that. Of course it would be nice to make at least one friend, but since I know I have friends outside of university, I don’t perceive it to be the ‘end of the world’ if I don’t – I once would have thought this if I’d gone to university earlier! Moreover, if I decide to do the undergraduate degree that I’m contemplating, maybe I’ll have a better chance to integrate then – but even if that isn’t the case, as long as I enjoy the course, I’m generally happy and I have friends outside of university life, does it really matter as much as people make out?

 

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Frequently I do wish that I could be out drinking and socialising more, and social media is the worst for comparison – when I see people out drinking and having fun with friends on platforms like instagram, I wish I lived closer to mine, or had local friends, so I could go out more often instead of staying at home and doing nothing. All too often, I feel like I’m missing out on the social side of things – although on the other hand, I worry about money a lot so it’s probably a good thing I don’t go out too often because it’s expensive! I also find that I really appreciate the occasional nights out that I do have with friends, much more so than I would if I went out more often. Furthermore, going out drinking/clubbing with students who I don’t know well doesn’t appeal to me anymore – I’d much rather really value the limited times I have with my real friends, with whom I also feel comfortable and more confident around. I have learned that having one or two really good friends, who you perhaps don’t get to see as often as you’d like but you always stay in touch with is much more important and valuable than having lots of people around you that you don’t really know or have much in common with. As for the clubs and societies, I have found that with my volunteering roles in my life outside of university, I simply don’t have the time to get involved with anything at the moment!

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Living away from home is another thing that plays on my mind more than it should do. My brother is successfully living at university, as did my sister along with lots of other people I know, and I often wish I was too – not because I don’t like living at home, because I love living with my family and I’m not unhappy in that respect. It makes me feel bad to say that, but I guess I just want the next level of independence and freedom. I also want to prove to others and particularly to myself that I’m capable of it, since the basic life skills worry me too – in addition, I often worry that people might think I’m not capable of living independently since I’m not ready to yet. Living 30 minutes away from university isn’t really worth the rent and besides, I know I’d probably hate it. It’s not the right time for me yet – I’m my own worst critic and enemy, so I need to keep reminding myself that I will get there, I will get to a point where I can move out, just because it’s not happened yet doesn’t mean I’ll never be able to. I need to trust my journey a bit more and not rush it. Things will happen for me in my own time! Being a mature student and having an all round different university experience than most people’s exciting student life can feel quite tough at times, but it is as valuable and worthy as anyone else’s. I do feel frustrated with it at times, but I generally feel ok about it because it’s the course I’m focusing on completing.

 

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So please, the next time you ask me about university, don’t ask me about whether I’ve made lots of friends and been out a lot. Ask me about the course itself, the city and what I’m enjoying about it.

 

 

 

An unwanted black dog visit

I have been wanting to write about mental health for a while, but have been unsure of how to start and apprehensive due to the personal, wide and often sensitive topic. However, I feel that it would be cathartic for me to share some things I’m going through and hopefully it will enable us to feel less alone, even if my writing isn’t the best! I’ve always found mental health difficult to talk about verbally, but can express it in writing more easily.

 

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When I first got diagnosed with depression and anxiety in 2015, I assumed they were things that I would eventually recover from. For some people with mild/moderate mental illness, this can certainly be the reality. However, particularly this year more than ever I’ve come to accept that for me personally, depression and anxiety are illnesses that I’m likely going to have to frustratingly learn to manage and control, to live with throughout my life.

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Sometimes, I experience sudden bouts of low mood. After quite a while of feeling fairly content and happy with the world in general, beginning to contemplate whether I’ve overcome mental illness for good, suddenly the big black overwhelming cloud engulfs me out of nowhere, which is really confusing for me. The black dog surprises me from time to time, for no logical reason or explanation. These episodes are really frustrating for often my family too. Usually, because I cannot articulate what’s wrong, I often feel a strong sense of guilt and selfishness. It must be really difficult for my family to know how to help, what to say, whether to approach me or leave me alone. I must be really difficult to be around, so when the black dog visits I tend to isolate myself and spend even more time alone, because I don’t want to burden, annoy or bring my family down. More often than not, I realise being alone when I’m experiencing spiralling negative thoughts about myself is a bad idea, but I can’t stop myself from doing it. On hard days, I also lack motivation and energy, feel sluggish and unproductive, struggle to be sociable, and sometimes the basics such as drinking and eating enough are unintentionally neglected – there is so much more to depression than just sadness! There is no logic to depression or any other mental illness – I’ve just broken up from university for a week’s break, it’s my sister’s birthday and we’re going out for a meal, so I ‘should’ be happy, and yet I’ve felt really tearful today and overwhelmed with overthinking and negative self talk, for no clear reason. One thing I’ve learnt is that mental illness is incredibly illogical and unpredictable as to when it will hit me and when it will pass again.

There is no straightforward answer as to how to help when I’m experiencing one of these down days. My family often ask me this, and I’m always unsure of what to say. I think the biggest thing anyone could do is to try and understand; no one will be able to understand completely if they haven’t experienced it themselves, but accepting it for what it is (an illness) and realising that I can’t help it and I’m trying my best would mean everything, taking the time to find out more and just being there. Little acts of kindness also mean a lot!

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It is also scary, because of the unpredictability of it – I’ve seen how bad things can get, the dark places my mind has taken me before, and I tend to panic that my mental health is deteriorating again and I will relapse to a particular bad, severe episode that I experienced earlier this year when I get low again.

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I have often found comfort in Matt Haig’s books!

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Dyspraxia and Me

 

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Chris Packham recently did a BBC documentary called ‘Aspergers and Me’ to educate people about the condition and to raise understanding and awareness of what it’s like to be him and the misconceptions surrounding autism. I found this powerful, emotional and heartwarming – prior to watching it, I didn’t realise Chris had this condition. I don’t know a lot about the difficulty, but I have previously worked with a lot of autistic children and it educated me more about some of the traits.

He visited America to see how they are trying to cure autism by electromagnetic radiation. In the special school he visited, children undergo rigorous repeated behaviour modification, in order to try to make them ‘normal.’ The professionals carrying out these potential treatments and cures say they would cure autism if they could, even going as far as comparing it to chemotherapy treatment for cancer. I felt that this was really wrong and upsetting; autism isn’t a disease, we should be embracing difference and accepting everyone for who they are as an individual.

Although I don’t have autism myself, ‘Aspergers and Me’ really got me thinking about my own difference, verbal dyspraxia. I can get very frustrated and down due to my struggle of speaking to people daily; having a different voice and struggling to be myself and communicating with everyone day to day is very isolating and lonely for me. I’m inevitably missing out on friendships and connections with different people, and everyone assumes I’m just really quiet, rude and weird – so frustrating!

However, when I reflect on my attributes I can see that dyspraxia has made me the person I am today. It has given me a lot of empathy, an ability to connect to the children with speech and language difficulties and other disabilities that I’ve worked with. Without any understanding of what they’re going through, I don’t think I could’ve done my job. It has also given me a real determination to succeed, particularly when someone doesn’t think I can do something. There’s nothing I like more than proving people wrong, and when I set my mind to do something I make sure I do it, no matter how tough it may be to accomplish. Tenacity, drive and resilience are traits that cannot be undervalued.

In addition, I wouldn’t have ever met so many people that play an important part in my life today, like my Regional Makaton Tutor who got me interested in the profession. None of that would have ever happened. I probably wouldn’t have ran the London Marathon, since my drive for doing it was to prove to people I could do something amazing when my parents were told I might not walk. I wouldn’t have raised all that money for charity and I wouldn’t have been awarded a Civic Honours Award in Solihull for ‘Inspirational Young Person.’ I wouldn’t have made the friendships I have now. The list goes on of what wouldn’t have been if I wasn’t dyspraxic, and the list is long.

When I think of these positive things, I feel so grateful for dyspraxia being a part of me. Like Chris with aspergers, if a so called ‘cure’ was ever offered for dyspraxia, although a lot of the time I’d love a normal voice and to be able to talk to everyone, I would probably say no. It’s part of who I am, and I’m proud to be me despite suffering a lot with low self esteem and anxiety due to all the struggles. There are positives!

‘We need to start redesigning society rather than redesigning the individual’

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My happy place

There is no better feeling than taking some time to slow down and indulge in a little ‘me time’ – the difficulties of daily life may grind you down, leave you feeling low or anxious. Therefore, I feel that it is paramount that you regularly do something nice for you, to lift your spirits and be at peace once again with your often troublesome mind.

My go to place when I want to escape the stresses of daily life is my local canal. To me, it is a haven of tranquility; there is something about hearing the quiet song of the birds in the trees, the solidarity of being alone, the open landscape, that I find incredibly mindful and calming. It forces you to take notice of what’s around you and to live in the moment, which creates a strong sense of serenity for me.

There is just something about being in the countryside amongst nature, where you feel like nothing in the world can get to you – the susurration of the green wheat in the fields, the gentle flow of the canal’s water, are a hymn sung straight into my soul, the grazing sheep, trees and lush green grass all part of the music as I walk along. The more the breeze blisters, the birds tweet, the quieter my mind becomes and the more at peace I feel with the world.

Even in the grey winter, the glistening frost makes the landscape idyllic.

Spring is my favourite season to be walking along the canal and over the rolling fields. The season of birth, of renewed hope, of radiance. The promise of sunshine as a developing photograph – the colours deepening with the richness of the season. Wild flowers rising from the earth, looking to the casual eye as weeds before they bloom into their bold colours.

Even at my lowest points, my darkest days, when I feel unmotivated or too fatigued to do anything, when I feel the weight of the world on my shoulders, I make the effort to retreat to my relaxing place (depending on the weather!) I may not be able to run away from my problems, but I can at least distract myself for a while and make myself feel better.

What’s your happy, go to, peaceful place?

Female dyspraxic struggles

Most young women love makeup, and are great at applying it and making themselves look good. Unfortunately, due to my difficulty with some fine motor skill tasks, this is harder for me to do.

Admittedly, I’ve never been a big fan of makeup. Don’t get me wrong, I really like how it looks when it’s on – I also find that I can feel a bit more confident whilst wearing it – but as it takes me a long time to apply, and I’ve never mastered the skill properly, I don’t wear it every day unlike most other people my age. I find it too much of a hassle to bother with on a day to day basis, although I often feel self conscious without any on out and about. I feel there is almost an expectation placed on women to wear it all the time, and people think you’re weird if you don’t. Everyone thinks I’m younger than my age when they meet me and I’m not wearing makeup, because twenty year old women tend to always wear it!

When I’m going for a day/night out with friends or family, I like to always make the effort to apply it, even if it’s just a bit of foundation and blusher to cover my imperfections and enhance my look, although it can take me longer to get ready!

My makeup applying skills have definitely improved, and hopefully will continue to improve the more I practise; I never used to be able to put anything on myself without making a mess, always having to ask my mum or sister to do it for me which was nothing short of frustrating. Now, I can do the basics myself – concealer, foundation, blusher, mascara, a bit of eyeshadow. Even so, it can take me a long time to get it just right, and there are continuous instances of putting too much of something on and looking orange, or not matching the colours properly and looking like a clown! I still can’t do eye makeup very well, and have never been able to master the art of eyeliner – it just goes everywhere! In addition, I’ve never understood how you ‘match colours’ or how to pick the right colours for your personal skin tone. My knowledge of make up is virtually non-existent.

My selection of makeup that I don’t often wear!

Above: my selection of makeup that I don’t often wear!

Nail varnish has been something that I’ve had to stay away from. I remember when I was in my early teenage years, I used to want to apply it every time I went to a concert for some bizarre reason. I failed to see that it was all over my fingers, not having a good understanding of my dyspraxia then, failing to acknowledge that I had more difficulty with nail polish than most other people. Another period of my life was in year ten at school, wanting to fit in with all the other girls and so attempting to put makeup on every morning before I went. This resulted in a completely orange look, I had no awareness of what I couldn’t do!

When you have thick, naturally wavy hair, you can get a lot of compliments. However, I’ve always found this another area of difficulty to manage, although as I’ve got older I can effectively do it myself now. It can get tangled and out of control! As it often goes all over the place, I have a tendency to straighten it a little more often than I evidently should – this has resulted in dry, frizzy hair. Although I try not to straighten it as much, it can be hard to resist when I think it looks a mess, and brushing it won’t work. It’s a constant dilemma!

Above: hair care products that I like to use!

Not fitting in to the natural expectations of society has caused me to compare myself to prettier girls a lot, and has caused me to worry that people are judging me for not wearing makeup. I wish I liked makeup more, I wish I could apply it more effectively and be like most other young women my age, I wish I felt comfortable with how I looked in my own skin and I wish my hair I wasn’t such a nightmare to look after!

Dyspraxia can make these skills more difficult to learn, and I wish more people recognised and understood that I want to fit in, but I can’t always do the skills that I want to do!

New pen pal

A low hum of chatter, faint beeping noises of phones and stressed passengers desperately trying to locate their reserved seats at each station stop, with huge suitcases blocking the carriageway and causing chaos amongst fellow commuters. Friday afternoon. I was on a CrossCountry train up to the city of York and was pleased to be able to make use of the complimentary wifi as I stared out the window, watching the world go by and observing people on the busy train.

It was just after 4pm and I must have just passed Derby when a facebook messenger notification popped up on my phone, from a choir friend explaining that a letter had been delivered to her addressed to me. Weird. She thought it was related to the Solihull Civic Award I won in 2017, but my head was spinning with trepidation and utter bewilderment. What could it be?

When I was sent a photo of the envelope I was stunned – it had 10 Downing Street clearly written on the back. My immediate thought was it could be a joke from someone – why would the Prime Minister be writing to me? It didn’t make sense. I needed answers to the dozens of questions I had. Perplexed was an understatement. The man sitting next to me must have sensed I was tense as he glanced at me when I was literally gawping at my phone in disbelief – what did he think was going on? My head was pounding, my heart skipped a beat. To make the tension feel unbearable, I had asked for the letter to be opened on my behalf as I was eager to know what it was. The agonising wait for a response from my mum explaining what it was felt like hours (when it was minutes in reality) – meanwhile I was feeling hot with dizziness.

Finally, this was a photo of the letter I received:

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Theresa May, my new pen pal?

I still don’t understand the process of how my information got passed on to 10 Downing Street, it’s a real mystery. My unanswered questions remain – why, when, how? Why did it get delivered to a friends address? Theresa was incorrect (like she is in many other ways) about the fact that my friend wrote a letter to her. My details were obviously passed on when I received the previous award – I never imagined my story would make it to Downing Street! To be honest, I also don’t feel like I really deserve this level of recognition; I am a Youth Champion for the Dyspraxia Foundation, and soon to be a Local Coordinator for the West Midlands, as well as other roles – but there are so many people in the UK doing more voluntary work, awareness raising and fundraising than me who deserve to be recognised for their hard work more so than me. My mate Theresa certainly thinks I deserved a letter from her though, personally signed! Astounding.

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When you consider the fact that I don’t agree with Theresa May and her politics, and she irritates me on a daily basis, it makes this even more amusing!

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Me after seeing the letter from my new mate…

2019

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I never bother with making New Year’s resolutions. Instead, I think about what I want to do more of and less of in the coming year to improve my wellbeing and self esteem. Outlined below are just a few of the things I’ve come up with. 

Things I want to do more of:

 

Travelling 

New York is already booked in February. Among the things I’m looking forward to doing in the Big Apple are the Empire State Building, Rockefeller Center, Liberty/Ellis Island, Ground Zero and wandering around Central Park and Times Square. For as long as I can remember, I’ve always wanted to go and I’m even excited about the airport and the flights, as it will be a new experience for me! 

There are so many places I want to go to, so much of the world I want to see in Europe, Asia and further afield. One thing I’ve longed to do for years is to escape the cold and dark reality of the winter here to swap with somewhere hot for a couple of weeks. Money and work get in the way a lot of my desire to travel, although I hope I’ll get more opportunities to explore different places soon.

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Seeing friends and socialising

Many friends I have recently gained are long distance, but I hope to see more of them this year through the official Dyspraxia Foundation events and also on a casual meeting up basis. Being my chatty self is by no means easy in any way, but the more I socialise with the right people, hopefully my self confidence will increase, which in turn will enable me to express myself verbally more to a variety of people. Whether due to either choosing not to participate in social situations because of the overwhelming anxiety/panic I sometimes experience, genuinely not being able to go or constantly being left out and uninvited on purpose, I tend to feel really lonely and isolated, particularly when everyone else seems to be having fun with friends at a particular time of year e.g. Christmas or New Year. Living with severe social anxiety and low self esteem is very difficult, but the more I push myself to do things with others hopefully I’ll see that I’m not alone and that people do care about me.

 

Doing things outside my comfort zone

Linking to the above heading about pushing myself to go to social things, I’m going to do more outside my comfort zone to develop socially. Continuing the anxiety inducing things I’m already doing including teaching staff in a local primary school makaton sign language, to new daunting prospects like giving talks, will hopefully improve my ability to express myself verbally and chat to colleagues, staff and friends.

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Raising awareness of dyspraxia

Going forward in my Youth Champion role, my number one objective is to raise much needed awareness of the poorly understood and little known about difficulty. Emphasis tends to be on the physical side of it in particular, evident of the fact that it used to be referred to as ‘clumsy child syndrome.’ Overlooked is the social and emotional side of it, in spite of the fact that these aspects affect some individuals much more than the physical side, myself included. Starting my new role as the Local Coordinator for the Dyspraxia Foundation in the West Midlands will be an exciting venture and an opportunity in which I hope will be successful in connecting with families affected by the condition, offering advice and support and arranging activities within the local area.

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Things I want to do less of:

 

Comparing myself to others

Over the last few years I have been guilty of this a lot. Exam results, university, holidays, as well as feeling that some people are a lot prettier and more popular than me. I tend to wish I had a group of friends and I had the same opportunities as everyone else, envying social situations and feeling worthless. A burden. Unliked. Comparison is such an easy trap to fall into, and one that is challenging to climb out of. Dyspraxia brings me struggles that most others would find easy – putting on makeup, taking longer to process information or instructions and lacking the confidence/being unable to talk to unfamiliar people, so these difficulties mean I do miss out on things. Something I need to practise is embracing who I am as an individual, looking beyond my flaws and into a more positive frame of mind. Recognising my talents, attributes, skills and abilities that others without dyspraxia don’t necessarily have, or have to the same degree. Every individual is on their own journey in life, and it’s not a competition. Expectations seem to be placed on us to do things at a certain age, but I need to ignore negative people and negative self esteem. Things may be taking me longer, but my journey is valid and in the end, I will do whatever I want to do.

Negative thoughts and overthinking 

‘I’m not good/clever enough’

‘I’m destined to fail’

‘I’m worthless/useless’

‘No one likes or cares about me’

‘I’m a burden’

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These are some of the soul destroying lies the bully in my brain frequently tells me. Constant repetition, particularly late at night, is hard to ignore and often leads me to believe these claims.  Again, the middle of the night is the time when view everything I’ve ‘failed’ in, every bad thing that’s happened in my life, every mean thing everyone has ever said/done to me. The negative automatic thoughts don’t seem to switch off when I need to relax or go to sleep. There are some CBT techniques that I would like to try, discovered by discussing with friends, past experience and browsing online. I would really like to have a more positive mindset of myself, to like myself the way I am and to not feel like a burden, also putting an end to beating myself up about small things to prevent my self esteem from completely shattering. Frustratingly, I know this will take time. 

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Issues I face in the workplace

Since leaving school/college and making the daunting step into employment, barriers and challenges have arisen in the workplace that I’m trying my best to overcome. Dyspraxia has many strengths, but it does make certain tasks more difficult to process/understand. It also makes everything a lot more exhausting physically and mentally, because I have to work much harder than most people and put a substantial amount of effort into everything I do to perform to my best ability.

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Social anxiety

By far the biggest barrier I face on a daily basis, this is also the most frustrating. Due to my verbal dyspraxia and all the trauma of not being understood when I was younger (maybe some form of PTSD), I therefore feel more self conscious of my voice as I’ve got older. This has created severe anxiety of not being comprehended correctly. Furthermore, I can be slower to process what has been said sometimes and it can take me longer to think of an appropriate response. I tend to appear very quiet and withdrawn, when actually all I want is to be my chatty self. I long to ask questions, to contribute to and initiate conversations. I’m constantly concerned about how this comes across to other people – I’m worried people will perceive me as rude, difficult, uninterested in them and anything they say, boring – this has often been the case in the past. I have hobbies and interests like everyone else which I wish I could get across. There needs to be an increased understanding and awareness of social anxiety and how it affects people in the work environment.

 

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Short term memory

I wouldn’t say this is a regular occurrence, but nevertheless sometimes my short term memory can be shocking. I’ve had instances in my current workplace where I’ve forgotten to complete a task that someone has asked me to do. When I’m focused on one task and concentrating on what to do next all the time, it’s easy for extra instructions to disappear from my mind quickly. Therefore, implementing written down instructions have proved to be beneficial for me. I should also learn to be more flexible in the order I do things in my routine, to prioritise jobs that need doing and to perhaps do whatever extra thing I get asked to do immediately, prior to forgetting it! Routine is something I am very fond of, but I should maybe change it at times to get certain jobs done quicker or better.

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Processing instructions

Primarily, the language, social and communication aspect of dyspraxia affects me the most. This also applies to my processing of other people’s language. When someone asks me if I could do something, it can sometimes take a while for me to process the information given and understand the instruction. As outlined above, I never have the confidence to ask the individual to clarify or repeat it either. This is also due to negative experiences in previous years.

 

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Surviving in a non-dyspraxic working environment can be exhausting at times – I always arrive home shattered! I have a lot of anxiety about future employment and if they’ll be supportive and understanding of the issues I have to face in daily life. So far I have had a really negative workplace, but fortunately this year I am working with friendly people to seem to grasp my difficulties and support me to fulfil my role. Encouragement, praise when I’ve done something well and colleagues chatting to me and including me all help to boost my self esteem and confidence levels – something I need to do this year after the discrimination, negative judgement and unfriendliness I experienced last year. With support and positive reinforcement, I firmly believe us dyspraxics can be an asset to the workplace. I just wish more people would take the time to get to know me and see beyond my quietness and awkwardness that I appear around everybody except family, through no fault or choice of my own. It is a debilitating mental health issue.

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